Your data for research (GDPR Guidelines and Anonymous Data)

Your data for research (GDPR guidelines and Anonymous data)

If you do agree to take part in a study, you will be asked to sign a consent form. This will clearly state which parts of your medical notes (if any) may be looked at for the purposes of the research study. Nobody from outside your practice organisation will be given your contact details or have access to your medical records without your prior consent.

 

This practice is also participating in national database project(s) which collect anonymised electronic medical records from GP surgeries throughout the UK.  Through the electronic clinical system we use to record medical notes, a completely anonymous (i.e. no identifiable patient details are shared at all) extract is taken which is used for medical research.  This clinical data is then catalogued and provides continuous monitoring of infection and disease around the UK.

 

Following GDPR guidelines and ensuring your data is protected

Use of third-party document outsource processors (mailing companies)

Researchers regularly use document outsource processors such as Docmail to send study information to people who might be interested in taking part in clinical research. Only companies that are confirmed as being fully compliant with the laws surrounding data protection and data sharing, such as GDPR, are used. In addition to this, providers will be reviewed and permitted by the regulatory bodies that ethically approve, govern, and oversee clinical research taking place in the UK, such as the NHS Health Research Authority and Research Ethics Committees.

 

We would like to reassure you that, should you receive an invite to participate in a research study:

  • The letter will have come directly from the practice. We do not share identifiable information with researchers without patient consent.

  • It is our practice staff who perform research mailouts using the document outsource processor. Your contact details will not be shared outside of the system and will be deleted after 28 days.